Parkinson’s Disease - Phoenix Resources
Home Instead Senior Care Greater Phoenix welcomes Ms. Margaret Anne Coles, Program Manager at The Muhammad Ali Parkinson Center (MAPC). Margaret Anne gives us insight into the Parkinson Center, and the programs and education classes they offer to those living with Parkinson’s disease in the Phoenix area. MAPC is a National Parkinson Foundation Center of Excellence, and a wonderful resource for people with Parkinson’s and their families.
The staff of MAPC is committed to providing excellence in diagnosis, treatment, research and education for people with Parkinson’s disease (PD) and other movement disorders. They extend an open invitation to you to participate by attending their support groups, educational classes, research studies, assistance programs, conferences, recreational programs and other services.
How many people living with Parkinson’s disease participate in your classes and programs here in the Phoenix area?
Margaret Anne: Last year we had 4320 attendances at our recreation classes. About 500 people attended the education programs; 520 for our annual educational symposium (combined number for English and Spanish symposia), about 1100 people attend Support Groups.
Do doctors and hospitals refer clients to you?
Margaret Anne: Certainly physicians refer patients to us but I would say most of the people we see at the Center for the programs are self-referrals. People do not need a physician referral to attend programs – all they need is a diagnosis of Parinson’s Disease.
In your years of experience working with people living with PD, do you find that exercise can improve their flexibility, strength, posture, and balance?
Margaret Anne: The current research tells us that exercise has a very positive benefit on the quality of life for people with PD. There is some discussion about whether the effects are neuroprotective having the ability to slow down disease progression. At the very least we know that exercise has a disease modifying effect. People feel better, have more energy and with the right exercise regime they can improve flexibility, strength, posture and balance.
Which class is best for someone with early diagnosis?
Margaret Anne: It is important for people early in their diagnosis to keep active. If they are exercising, as long as they can continue to do the activity safely, we encourage them to continue. All of the classes we offer are adapted to accommodate the challenges presented by Parkinson’s Disease and there are people at varying levels in every class. Maybe rather than focusing on which class is the best, because that is a personal choice based on what kind of activities people like to do, we should be focusing on keeping active and socially engaged. This looks different for different people.
How does a support group help them cope?
Margaret Anne: Support groups allow people to come together and share their experiences about living day to day with Parkinson’s Disease – everybody is in the same boat and it is an opportunity be yourself without any explanation needed, discuss challenges and learn how others manage these challenges as well as learn new information about treatment and managing day to day.
Tell me about the Walk-a-thon in February. Is this a large event primarily to raise awareness of the disease?
Margaret Anne: The Walk is certainly to raise awareness but it is also an opportunity for the Parkinson’s Disease community to come together. There is a Health fair, live music, face painting and it is heart warming to see three generations in a family walking together and enjoying the event. Proceeds from the event support the community outreach and education activities of the MAPC
How does Parkinson’s disease effect family members? And does your Caregiving class help them care for the patient/client?
Margaret Anne: Parkinson’s Disease does not just affect the person with the disease. Because it is a chronic progressive disease it has affects on peoples’ families and on their friends. Often the spouse goes through the same grieving process that the person with PD does as it changes their life as well. Accommodations are often necessary in ADL (activities of daily living) as well as some role adjustment on everyone’s part As the disease progresses with many people there are physical caregiving issues to contend with as well.
Thank you, Margaret Anne Coles for sharing information with us. We hope to increase awareness on help that is available in Phoenix for those living with illness.
For more information, please go to:
Muhammad Ali Parkinson Center
Barrow Neurological Institute
500 W. Thomas Road,
Suite 720
Phoenix, AZ 85013
602-406-4931
info@maprc.com
Greater Phoenix Senior Living & Central Phoenix Senior Living provides home care for elders and seniors . Call us! 623-583-5868, 480-991-3959 or 602-265-8228.

